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To
help make finding things easier, this page is divided up
into
Disability
Related Links
Education Related Links
Transition,
Employment and College Related
Links
Other Links
Disability
Related
www.ascendgroup.org
This is the ASCEND /
Asperger's support group website in Pennsylvania. They are a
well organized group of parents that host some good
programs.
www.delautism.org
Delaware chapter of
the Autism Society of America. Call or write
for a free packet of information about the disorder, what resources
are available in Delaware, etc. Local information as well as good
information like this study on Best Practices for Adults with
Autism.
depts.washington.edu/pdacent
Professional Development
in Autism Center is funded by the US Department of
Education.
www.aspergersyndrome.org
Home page for Online
Asperger Syndrome Information and Support (OASIS). Site is
associated with the University of Delaware has some good stuff
including a Kids Corner where adolescents write about their
experiences. Currently, the URL seems to be pointed at www.udel.edu/bkirby/asperge
www.nichcy.org
National Dissemination
Center for Children with Disabilities. Lots of good
information free to parents. Check out the comprehensive
list of NICHCY Publications for information on
everything from specific disabilities to educational issues to help
with transition and jobs.
www.add.org
Attention Deficit
Disorder Association. Although this site is designed for adults, it
has some good information that applies to kids too.
www.nlda.org
NLDA is a non-profit
corporation dedicated to research, education, and advocacy for
nonverbal learning disorders
www.tsa-usa.org
Tourette Syndrome
Association. Good information for kids, parents and teachers
including newletters, books, DVDs and seminars.
www.charityadvantage.com/aacld
National Association for
Education of Africian Americans with Learning Disabilities. The
organization’s mission is to link information and resources provided
by an established network of individuals and organizations
experienced in minority research and special education with parents,
educators, and others responsible for providing a quality education
for all students. The NAEAACLD believes that any program implemented
to benefit African American children will benefit all children.
www.tash.org
The Association for
Persons with Severe Handicaps, formerly The Association for the
Serverly Handicapped - hence the acronym. This organization focuses
on individuals who have traditionally been at greatest risk of being
excluded from the mainstream of society.
www.dsadelaware.org
Downs Syndrome
Assocation of Delaware advocates for the acceptance and
understanding that allows individuals with Down syndrome to achieve
the same level of access and opportunity as their peers. They offer
a number of supports from a New Parent Outreach to programs for
Adults.
www.thearc.org
According to their
website, the ARC is "is devoted to promoting and improving supports
and services for people with mental retardation and their families."
The local Delaware chapter is www.arcde.org
www.aamr.org
American Association on
Mental Retardation promotes progressive policies, sound research,
effective practices, and universal human rights for people with
intellectual and developmental disabilities.
www.iassid.org
International
Association for the Scientific Study of Intellectual
Disabilities.
www.namide.org
National Alliance for the
Mentally Ill in Delaware (NAMI-DE) is a statewide organization of
families, mental health consumers, friends, and professionals
dedicated to improving the quality of life for those affected by
life-changing brain diseases such as schizophrenia, bipolar
disorder, and major depression.
www.mhainde.org
The Mental Health
Association in Delaware is a statewide, nonprofit organization
affiliate of the National Mental Health Association (NMHA) whose
mission is to deliver mental health education, advocacy and support,
and to collaborate to provide mental health leadership in Delaware.
www.chadd.org
Children and Adults with
Attention-Deficit/Hyperactivity Disorder.
www.asha.org
The American
Speech-Language Hearing Association site has menu sections for
Professionals, Students and the Public. Under the Public menu, there
are pages with links information on specific disorders and self-help
groups.
www.ncapd.org
National Coalition
on Auditory Processing Disorders was created to assist
families and individuals affected by auditory processing disorders
through education, support, and public awareness as well as
promoting auditory access of information for those affected by
auditory processing disorders.
www.ldaamerica.org
Learning Disabilities
Association of America. Lots of information on this site with
sections for both parents and educators.There is legislative page
that for information on Federal legislation and a good book store
too. It has what looks like on-line training for topics like IDEA
but we don't have direct experience with that portion of the site.A
very large non-profit volunteer organization advocating for the
rights of persons with disabilities. Some good information on this
site with separate sections for parents and teachers.
www.smartkidswithld.org
Smart Kids with Learning
Disabilities is a non-profit organization dedicated to empowering
the parents of children with learning disabilities (LD) and
attention-deficit disorder (ADHD). In addition to the website, they
publish a newsletter.
www.biausa.org/Delaware/bia.htm
Brain Injury Association
of Delaware is associated with the Brain
Injury Association of America.
www.dsadelaware.org
Downs Syndrome
Association of Delaware was founded in 1979 as a non-profit parent
association. They aim to be a supportive resource, advocating
for the acceptance and understanding that allows individuals with
Down syndrome to achieve the same level of access and opportunity as
their peers.
www.newdirectionsdelaware.org
New Directions Delaware,
is a support group for people with depression or bipolar disorder
(manic depression) and for their families and friends. Located in
Wilmington, Delaware, their members come from Delaware, New Jersey,
Pennsylvania, and Maryland. Mew Directions offers support meetings
twice a month and educational meetings once a month, as well as a
major speaker once a year.
epilepsyfoundation.org/delaware
Epilepsy foundation
Delaware
www.ucp.org/ucp_local.cfm/52
United Cerebral Palsy of
Delaware provides programs and services to people with all types of
orthopedic disabilities, including spina bifida and muscular
dystrophy.
www.hlade.org
Hearing Loss Association
of Delaware provides information, education, support and advocacy to
open the world of communication to all individuals with hearing loss
- adults and children alike.
www.bpkids.org
The Child and Adolescent
Bipolar Foundation (CABF) is a parent-led, not-for-profit,
Web-based membership organization of families raising children
diagnosed with, or at risk for, pediatric bipolar disorder.
www.bpso.org
Bipolar Signigicant
Others site offers lots of links, chat rooms and other ways to get
and shared information about biloar disorder over the
internet.
www.dbsalliance.org
The Depression and
Bipolar Support Alliance (DBSA) is the nation’s leading
patient-directed organization focusing on the most prevalent mental
illnesses - depression and bipolar disorder. The organization
fosters an understanding about the impact and management of these
life-threatening illnesses by providing up-to-date,
scientifically-based tools and information written in language the
general public can understand.
www.dimenet.com
The mission of ILC's is
to empower persons with disabilities to exercise greater control of
their own lives, conduct community systems change activities to
ensure greater integration into the community, and provide
consumer-directed services to enable them to live in the least
restrictive and most integrated environments. Providing independent
living services is one of the most information intensive tasks ever
undertaken.
www.ocfoundation.org
The
mission of the Obsessive Compulsive Foundation is to educate the
public and professional communities about OCD and related disorders;
to provide assistance to individuals with OCD and related disorders,
their family and friends; and to support research into the causes
and effective treatments of OCD and related disorders.
www.adaa.org
The Anxiety Disorders
Association of America (ADAA) is a nonprofit organization whose
mission is to promote the prevention, treatment and cure of anxiety
disorders and to improve the lives of all people who suffer from
them.
www.selectivemutism.org
A support group to help
the public understand selective mutism.
www.childhoodanxietynetwork.org
A professional and
practical guide into the world of Childhood Anxiety and related
Childhood disorders. Their Goal is to keep you up to date with the
newest research and information about: OCD, Panic, Selective
Mutism, Separation Anxiety, Generalized Anxiety Disorder
(GAD), Social Anxiety, PTSD, Trichotillomania, Specific Phobia, and
conditions that can occur with childhood anxiety - Depression, ADHD,
DSI.
www.panicanxietydisorder.org.au
Panic Anxiety Disorder
Association believes that recovery from an anxiety disorder is a
process of empowering the individual to view their health from a
holistic perspective, to recognise their co-dependant behaviours and
to make self-responsible choices leading to optimum mental
health.
Education
Related
www.teachingld.org
www.spannj.org
The State-wide
Parent Advocacy Network of New Jersey is exactly what it sounds
like. The site snd SPANNJ organization was set up to train parents
and educators on issues related to education and advocacy for
children with disabilities - with a focus on traditionally
underserved poor urban dstricts. While there is some state specific
stuff that just applies to New Jersey, the Federal information and
the advocacy help apply to all states. At the time of this posting,
some parts of the site are pre-IDEA2004 and pre-NCLB, but again,
this is still a good site.
www.chlive.org/septa
Cherry
Hill Special Ed PTA. This is
the local group that helped inspire our organization. Some of the
events they list are close enough to attend.
www.cldinternational.org
The Council for Learning
Disabilities (CLD) is an international organization concerned about
issues related to students with learning disabilities. Involvement
in CLD helps members stay abreast of current issues that are shaping
the field, affecting the lives of students, and influencing
professional careers.
www.casecec.org
Council of Administrators of Special Education (CASE) is
an international professional educational organization which is
affiliated with the Council for Exceptional
Children whose members are dedicated to
the enhancement of the worth, dignity, potential, and uniqueness of
each individual in society.
www.napsec.org
The National Association of Private Special Education
Centers (NAPSEC) is a non-profit association whose mission is to
represent private special education centers and their leaders. This
is a good place to begin if you are thinking about private placement
for a student.
www.includeourkids.com
New group started
in nearby Great Valley School District in PA that is working for
inclusion in their district. Lots of good information on the topic
of inclusion.
www.fape.org
Families and Advocates
Partnership for Education (FAPE). Partially funded by Federal DOE.
This site has some good docs summarizing IDEA - hit the
"publications" button on the home page. This is a sub-site of the
larger Parent Advocacy Coalition for Educational Rights (www.pacer.org)
www.ecs.org
The Education Commission of
the States (ECS) is a non-profit, non-partisan interstate
organization created to improve public education by facilitating the
exchange of information, ideas and experiences among state
policymakers and education leaders. This is a good site to find
state to state comparisons on almost anything to do with education
from the average size of districts, to money spent per student. The
Special Ed reports include information on how different states
include Special Ed students in funding formulae, teacher
certification, disproportionate minority representation in Special
Ed- to name a few.
www.dropoutprevention.org
National Dropout
Prevention Center
www.ctpta.org/membership/septa
Connecticut Special Ed PTA. "SEPTA"
means Special Education PTA.
www.delawarepta.com
Delaware's State
PTA
organization
www.pta.org
National PTA has the
noble goal of ensuring a quality education and nurturing environment
for every child.
www.concordspedpac.org
Concord, Mass Special Ed
Parents Advisory Committee. This site has won awards for being among
the best of its kind.
www.specialeducationpta.org
Special Education
PTA (SEPTA) from South River, New Jersey. The site has some
interesting links and a great
newsletter.
www.mossfoundation.org
The mission of the
P. Buckley Moss Foundation for Children's Education is to promote
the integration of the arts into all educational programs, with a
special focus on children who learn in different ways. Check out the
Lesson Plans page.
www.dpi.state.wi.us/dpi/dlsea
Wisconsin Special Ed site.
Some good info and links even though variances state-to-state mean
everything is not applicable in Delaware.
www.reading.org
International Reading
Association
www.naset.org
National Association of
Special Ed teachers
www.naspweb.org
National
Association of School Psychologists. Good publications on a wide
range of issues.
www.napcse.org/site
National Association of
Parents with Children in Special Education
www.nasdse.org
National Association of
State Directors of Special Education
www.fcsn.org
Federation of Children
with Special Needs is a group out of Massachusetts with lots of good
information even if much is geared at that state.
Transition, Employment and
College Related
www.dcdt.org
The Division on Career
Development and Transition (DCDT), a division of the Council for
Exceptional Children (CEC), is a membership organization for persons
and families interested in career and vocational issues for students
with disabilities.
www.goodwill.org
Goodwill believes that work
has the power to transform lives by building self-confidence,
independence, creativity, trust and friendships. Goodwill is one of
the world’s largest nonprofit providers of education, training, and
career services for people with disadvantages, including those with
physical, mental and emotional disabilities.
www.ahead.org
Association on Higher Education
and Disability (AHEAD) is the premiere professional association
committed to full participation of persons with disabilities in
postsecondary education.
Other Links
www.c-c-d.org
The Washington based
Consortium of Citizens with Disabilities is a collection of
disability groups whose goal is to advocate on behalf of the member
groups to affect national policy and Federal legislation. The member
list alone is who's who of organizations for disabled
persons.
www.thecouncil.org
The Council on Quality and
Leadership is an international non-profit group to improve the
quality of services and supports for people with intellectual
disabilities and people with mental illness.
www.allianceforfullparticipation.org
An alliance between
leading groups representing people with disabilities whose goal is
inclusion of people with developmental disabilities into the
mainstream of American life.
www.sode.org
Special Olympics of
Delaware. The International Special Olympics site is www.specialolympics.org.
www.familyvoices.org
Family Voices is a
national, grassroots clearinghouse for information and education
concerning the health care of children with special health needs.
Check their site, includong the newsletter, Friday's
Child.
www.nativefamilynetwork.com
National Native American
Families Together Parent Center is an outreach program to increase
partnerships between Native American families and the professionals
who serve their children.
mothersfromhell2.org
Mothers from Hell 2 is was started by a group of moms in
Eugene, Oregon. As you can guess by their name, they have a sense of
humor but they also have some good links and stuff on their site
besides their Humor
page.
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