This is the ASCEND / Asperger’s support group website in Pennsylvania. They are a well organized group of parents that host some good programs.
Delaware chapter of the Autism Society of America. Call or write for a free packet of information about the disorder, what resources are available in Delaware, etc. Local information as well as good information like this study on Best Practices for Adults with Autism.
Home page for Online Asperger Syndrome Information and Support (OASIS). Site is associated with the University of Delaware has some good stuff including a Kids Corner where adolescents write about their experiences. Currently, the URL seems to be pointed at www.udel.edu/bkirby/asperge
National Dissemination Center for Children with Disabilities. Lots of good information free to parents. Check out the comprehensive list of NICHCY Publications for information on everything from specific disabilities to educational issues to help with transition and jobs.
Attention Deficit Disorder Association. Although this site is designed for adults, it has some good information that applies to kids too.
A Nonverbal Learning Disorder (NLD) website.
Tourette Syndrome Association. Good information for kids, parents and teachers including newletters, books, DVDs and seminars.
National Association for Education of African Americans with Learning Disabilities. The organization’s mission is to link information and resources provided by an established network of individuals and organizations experienced in minority research and special education with parents, educators, and others responsible for providing a quality education for all students. The NAEAACLD believes that any program implemented to benefit African American children will benefit all children.
The Association for Persons with Severe Handicaps, formerly The Association for the Serverly Handicapped – hence the acronym. This organization focuses on individuals who have traditionally been at greatest risk of being excluded from the mainstream of society.
Downs Syndrome Assocation of Delaware advocates for the acceptance and understanding that allows individuals with Down syndrome to achieve the same level of access and opportunity as their peers. They offer a number of supports from a New Parent Outreach to programs for Adults.
According to their website, the ARC is “is devoted to promoting and improving supports and services for people with mental retardation and their families.” The local Delaware chapter is www.arcde.org
American Association on Mental Retardation promotes progressive policies, sound research, effective practices, and universal human rights for people with intellectual and developmental disabilities.
International Association for the Scientific Study of Intellectual Disabilities.
National Alliance for the Mentally Ill in Delaware (NAMI-DE) is a statewide organization of families, mental health consumers, friends, and professionals dedicated to improving the quality of life for those affected by life-changing brain diseases such as schizophrenia, bipolar disorder, and major depression.
The Mental Health Association in Delaware is a statewide, nonprofit organization affiliate of the National Mental Health Association (NMHA) whose mission is to deliver mental health education, advocacy and support, and to collaborate to provide mental health leadership in Delaware.
Children and Adults with Attention-Deficit/Hyperactivity Disorder.
The American Speech-Language Hearing Association site has menu sections for Professionals, Students and the Public. Under the Public menu, there are pages with links information on specific disorders and self-help groups.
National Coalition on Auditory Processing Disorders was created to assist families and individuals affected by auditory processing disorders through education, support, and public awareness as well as promoting auditory access of information for those affected by auditory processing disorders.
Learning Disabilities Association of America. Lots of information on this site with sections for both parents and educators.There is legislative page that for information on Federal legislation and a good book store too. It has what looks like on-line training for topics like IDEA but we don’t have direct experience with that portion of the site.A very large non-profit volunteer organization advocating for the rights of persons with disabilities. Some good information on this site with separate sections for parents and teachers.
Smart Kids with Learning Disabilities is a non-profit organization dedicated to empowering the parents of children with learning disabilities (LD) and attention-deficit disorder (ADHD). In addition to the website, they publish a newsletter.
Brain Injury Association of Delaware is associated with the Brain Injury Association of America.
Downs Syndrome Association of Delaware was founded in 1979 as a non-profit parent association. They aim to be a supportive resource, advocating for the acceptance and understanding that allows individuals with Down syndrome to achieve the same level of access and opportunity as their peers.
New Directions Delaware, is a support group for people with depression or bipolar disorder (manic depression) and for their families and friends. Located in Wilmington, Delaware, their members come from Delaware, New Jersey, Pennsylvania, and Maryland. Mew Directions offers support meetings twice a month and educational meetings once a month, as well as a major speaker once a year.
Epilepsy foundation Delaware
United Cerebral Palsy of Delaware provides programs and services to people with all types of orthopedic disabilities, including spina bifida and muscular dystrophy.
Hearing Loss Association of Delaware provides information, education, support and advocacy to open the world of communication to all individuals with hearing loss – adults and children alike.
The Balanced Mind Foundation guides families raising children with mood disorders to the answers, support and stability they seek.
Bipolar Signigicant Others site offers lots of links, chat rooms and other ways to get and shared information about biloar disorder over the internet.
The Depression and Bipolar Support Alliance (DBSA) is the nation’s leading patient-directed organization focusing on the most prevalent mental illnesses – depression and bipolar disorder. The organization fosters an understanding about the impact and management of these life-threatening illnesses by providing up-to-date, scientifically-based tools and information written in language the general public can understand.
The mission of ILC’s is to empower persons with disabilities to exercise greater control of their own lives, conduct community systems change activities to ensure greater integration into the community, and provide consumer-directed services to enable them to live in the least restrictive and most integrated environments. Providing independent living services is one of the most information intensive tasks ever undertaken.
The mission of the Obsessive Compulsive Foundation is to educate the public and professional communities about OCD and related disorders; to provide assistance to individuals with OCD and related disorders, their family and friends; and to support research into the causes and effective treatments of OCD and related disorders.
The Anxiety Disorders Association of America (ADAA) is a nonprofit organization whose mission is to promote the prevention, treatment and cure of anxiety disorders and to improve the lives of all people who suffer from them.
A support group to help the public understand selective mutism.
The Child Anxiety Network is designed to provide thorough, user-friendly information about child anxiety. It is also designed to provide direction for those who are not sure where to turn when they think their child or a child they know may need professional help to cope with anxiety.
Panic Anxiety Disorder Association believes that recovery from an anxiety disorder is a process of empowering the individual to view their health from a holistic perspective, to recognize their co-dependent behaviors and to make self-responsible choices leading to optimum mental health.
TeachingLD is a service of the Division for Learning Disabilities (DLD) of the Council for Exceptional Children. DLD is the largest international professional organization focused on learning disabilities. The purpose of TeachingLD is to provide trustworthy and up-to-date resources about teaching students with learning disabilities. This site was designed with teachers in mind but it has great information for anyone. Lots of good stuff for reading and downloading!
The Teacher Education Division (TED) of the Council for Exceptional Children emphasizes the preparation and continuing professional development of effective professionals in special education and related service fields. Members receive Teacher Education and Special Education and the TEDLines newsletter.
The State-wide Parent Advocacy Network of New Jersey is exactly what it sounds like. The site snd SPANNJ organization was set up to train parents and educators on issues related to education and advocacy for children with disabilities – with a focus on traditionally underserved poor urban dstricts. While there is some state specific stuff that just applies to New Jersey, the Federal information and the advocacy help apply to all states. At the time of this posting, some parts of the site are pre-IDEA2004 and pre-NCLB, but again, this is still a good site.
Cherry Hill Special Ed PTA. This is the local group that helped inspire our organization. Some of the events they list are close enough to attend.
The Council for Learning Disabilities (CLD) is an international organization concerned about issues related to students with learning disabilities. Involvement in CLD helps members stay abreast of current issues that are shaping the field, affecting the lives of students, and influencing professional careers.
National Association for the Education of African American Children with Learning Disabilities (AACLD). Advocating for African American families with children who learn differently.
Council of Administrators of Special Education (CASE) is an international professional educational organization which is affiliated with the Council for Exceptional Children whose members are dedicated to the enhancement of the worth, dignity, potential, and uniqueness of each individual in society.
The National Association of Private Special Education Centers (NAPSEC) is a non-profit association whose mission is to represent private special education centers and their leaders. This is a good place to begin if you are thinking about private placement for a student.
Families and Advocates Partnership for Education (FAPE). Partially funded by Federal DOE. This site has some good docs summarizing IDEA – hit the “publications” button on the home page. This is a sub-site of the larger Parent Advocacy Coalition for Educational Rights (www.pacer.org)
The Education Commission of the States (ECS) is a non-profit, non-partisan interstate organization created to improve public education by facilitating the exchange of information, ideas and experiences among state policymakers and education leaders. This is a good site to find state to state comparisons on almost anything to do with education from the average size of districts, to money spent per student. The Special Ed reports include information on how different states include Special Ed students in funding formulae, teacher certification, disproportionate minority representation in Special Ed- to name a few.
National Dropout Prevention Center
Connecticut Special Ed PTA. “SEPTA” means Special Education PTA.
Delaware’s State PTA organization
National PTA has the noble goal of ensuring a quality education and nurturing environment for every child.
Concord, Mass Special Ed Parents Advisory Committee. This site has won awards for being among the best of its kind.
Special Education PTA (SEPTA) from South River, New Jersey. The site has some interesting links and a great newsletter.
The mission of the P. Buckley Moss Foundation for Children’s Education is to promote the integration of the arts into all educational programs, with a special focus on children who learn in different ways. Check out the Lesson Plans page.
Wisconsin Special Ed site. Some good info and links even though variances state-to-state mean everything is not applicable in Delaware.
International Reading Association
National Association of Special Ed teachers
National Association of School Psychologists. Good publications on a wide range of issues.
National Association of Parents with Children in Special Education
National Association of State Directors of Special Education
Federation of Children with Special Needs is a group out of Massachusetts with lots of good information even if much is geared at that state.
Transition, Employment and College Related
The Division on Career Development and Transition (DCDT), a division of the Council for Exceptional Children (CEC), is a membership organization for persons and families interested in career and vocational issues for students with disabilities.
Goodwill believes that work has the power to transform lives by building self-confidence, independence, creativity, trust and friendships. Goodwill is one of the world’s largest nonprofit providers of education, training, and career services for people with disadvantages, including those with physical, mental and emotional disabilities.
Association on Higher Education and Disability (AHEAD) is the premiere professional association committed to full participation of persons with disabilities in postsecondary education.
The Washington based Consortium of Citizens with Disabilities is a collection of disability groups whose goal is to advocate on behalf of the member groups to affect national policy and Federal legislation. The member list alone is who’s who of organizations for disabled persons.
The Council on Quality and Leadership is an international non-profit group to improve the quality of services and supports for people with intellectual disabilities and people with mental illness.
An alliance between leading groups representing people with disabilities whose goal is inclusion of people with developmental disabilities into the mainstream of American life.
Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs. Check their site, includong the newsletter, Friday’s Child.
The American Indian Disability Technical Assistance Center (AIDTAC) was inaugurated in October 2000 with an initial five-year grant by the U.S. Department of Education’s Rehabilitation Services Administration, as a national center to provide information, training, and technical assistance to vocational rehabilitation and employment-related services assisting American Indians and Alaska Natives with disabilities. The work has expanded to include Native Hawaiians. In conjunction with other programs at the Rural Institute of The University of Montana, AIDTAC addressed issues of employment, transportation, health, independent living, voter participation, and education. Funding was discontinued in 2008, but some of the materials developed by AIDTAC can still be found on the Technical Assistance on Native American Culture project (TANAC) website. TANAC was funded by the Social Security Administration (SSA). Other materials may be found on the Research and Training Center on Disability in Rural Communities (RTC) website.
Mothers from Hell 2 is was started by a group of moms in Eugene, Oregon. As you can guess by their name, they have a sense of humor but they also have some good links and stuff on their site besides their Humor page